European Glut1 Deficiency Organization

The aim of the European G1D Organisation is to bring together Glut1 patients and communities across Europe for mutual support.
Our two main goals are to improve the daily lives of people affected by Glut1 and to promote scientific research into this condition.


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About “Glut1 Deficiency”?

Glucose Transporter Type 1 Deficiency Syndrome is a genetic disorder that impairs brain metabolism. Glucose is not transported properly into the brain, which leaves it starving for the metabolic fuel it needs to grow, develop, and function the way it should.

Currently, the only known treatment for this condition is a ketogenic diet which is high in fat and low in carbohydrates. The ketones generated by following this diet can be used as an alternative source of fuel for the brain. This improves the symptoms and development for many patients, but is not always easy to implement and stick to.


About the European G1D Organisation


European Glut1 Conference Postponed to 2021

Due to the on-going Covid 19 pandemic the European Glut1 conference has been postponed until June 2021.

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Glut1 in the News

An article by Journalism students about the difficulties faced by patients with rare diseases (including Glut1) during the lockdown in Italy

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Online Meeting for European Glut1 Community

Join our Online Meeting for European Glut1 Community on Saturday 25 April at 4pm Central European Time

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