European Glut1 Deficiency Organization

News


 

04/09/2020

Consensus Paper for Glut1 Deficiency available

A summary of current research and treatment recommendations for Glut1 Deficiency has been published.


04/09/2020

Glut1 Deficiency Given Its Own ICD-10 Code

Glut1 Deficiency has been assigned its own ICD-10 Code (E74.810).


13/08/2020

New membership option

A new option has been created to allow for individual membership in cases where there is a national organisation that is not a member.


04/05/2020

European Glut1 Conference Postponed to 2021

Due to the on-going Covid 19 pandemic the European Glut1 conference has been postponed until June 2021.


20/04/2020

Glut1 in the News

An article by Journalism students about the difficulties faced by patients with rare diseases (including Glut1) during the lockdown in Italy


18/04/2020

Online Meeting for European Glut1 Community

Join our Online Meeting for European Glut1 Community on Saturday 25 April at 4pm Central European Time


04/04/2020

FAQ Glut1 Deficiency and COVID-19

Summary of the Glut1 Foundation's Q&A on Coronavirus and Glut1 with Dr Juan Pascual


27/03/2020

European Glut1 Conference Postponed

3rd European Glut1D Conference postponed to September 18-19, 2020


19/03/2020

Tips for your Keto Store Cupboard

Some helpful tips from the keto experts at Matthew's Friends and the Charlie Foundation on building up a basic supply of ingredients for the ketogenic diet


13/03/2020

Coronavirus and Glut1

Expert opinion from a member of our Medical Advisory Board


15/01/2020

#keto2020

A date for your New Year diary/calendar!