European Glut1 Deficiency Organization

News

Glut1 in the News

Master students from the Journalism program at the Università IULM in Milan publish the magazine Quindi. The latest issue covers different aspects of the coronavirus pandemic and one article talks about the additional challenges the lockdown causes for patients with rare diseases.
Our president Massimiliano Barone spoke to them about how Glut1 patients are affected by interrupted therapies, difficulties and delays in getting medication and keto-friendly foods, but also the disruptions in the relationships with friends, school and their wider communities.
You can find the magazine here - the article is on page 17.